SWYC Research and Publications

SWYC-related research and publications are available for download. If you are aware of SWYC-related research we are missing, please let us know at SWYC.TEAMUPCenter@bmc.org.

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A Family-Centered Intervention to Monitor Children’s Development in a Pediatric Outpatient Setting: Design and Feasibility Testing

Rasheed, M. A., Mughis, W., Elahi, K. N., & Hasan, B. S. (2021). A Family-Centered Intervention to Monitor Children’s Development in a Pediatric Outpatient Setting: Design and Feasibility Testing. Frontiers in Health Services, 1, 739655.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
A retrospective cohort study analyzing the changes in early childhood development during the COVID-19 pandemic

Romem, S., Katusic, M., Wi, C. I., Hentz, R., & Lynch, B. A. (2024). A retrospective cohort study analyzing the changes in early childhood development during the COVID-19 pandemic. Early Human Development, 192, 105991.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Abbreviated screening instrument for autism spectrum disorders

Smith, N., Sheldrick, R.C. & Perrin, E.C. (2012). An abbreviated screening instrument for autism spectrum disorders. Infant Mental Health Journal, 34, 149-155.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
Adherence to screening and referral guidelines for autism spectrum disorder in toddlers in pediatric primary care

Wallis, K. E., Guthrie, W., Bennett, A. E., Gerdes, M., Levy, S. E., Mandell, D. S., & Miller, J. S. (2020). Adherence to screening and referral guidelines for autism spectrum disorder in toddlers in pediatric primary care. PloS one, 15(5), e0232335.

SWYC Implementation, SWYC Milestones, SWYC Publicationsswyc-implementation swyc-milestones swyc-publications
Assessing the validity of the Baby Pediatric Symptom Checklist using a nationally representative household survey.

Zablotsky, B., Black, L.I., Sheldrick R.C., Perrin, E.C. & Blumberg, S.J. (2022). Assessing the validity of the Baby Pediatric Symptom Checklist using a nationally representative household survey. Academic Pediatrics, S1876-2859. PMID: 36351514.

SWYC BPSC, SWYC Publicationsswyc-bpsc swyc-publications
Association of development quotient with nutritional status

Freitas-Costa, N. C., Farias, D. R., Alves-Santos, N. H., Scincaglia, R., Normando, P., Rugani, I., … & Kac, G. (2025). Factors associated with early childhood development: results from the Brazilian National Survey on Child Nutrition (ENANI-2019). BMJ Public Health, 3(1).

SWYC Publicationsswyc-publications
Association of Possible Developmental Delays with Emotional and Behavioral Disorders, and Risk Factors in Children Under Six in Karachi, Pakistan

Shabbir, S., Mahmood, K., Jamal, N., Ara, G., Fawad, B., & Salahuddin, S. (2025). Association of Possible Developmental Delays with Emotional and Behavioral Disorders, and Risk Factors in Children Under Six in Karachi, Pakistan: A Cross-sectional Study: Association of Developmental Delays with Emotional and Behavioral Disorders. Pakistan Journal of Health Sciences, 88-94.

SWYC Pashto, SWYC Publicationsswyc-pashto swyc-publications
Autism screening using the parent’s observation of social interactions in a large integrated healthcare system

Loo, K. K., Yang, S. J., & Cheng, J. C. (2025). Autism screening using the parent’s observation of social interactions in a large integrated healthcare system. The Journal of Pediatrics, 278, 114434.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
Comparative accuracy of developmental screening questionnaires

Sheldrick, R.C., Marakovitz, S., Garfinkel, D., Carter, A.S., Perrin, E.C. (2020). Comparative accuracy of developmental screening questionnaires. JAMA Pediatrics, 174(4), 366-374. PMID: 32065615.

SWYC Concerns, SWYC Milestones, SWYC Publicationsswyc-concerns swyc-milestones swyc-publications
Comparison of Literacy and Developmental Screening of Preschool-Aged Children During Primary Care

Bode, S. M., Denny, S., Masonheimer, A., Irwin, M. K., & Hutton, J. (2025). Comparison of Literacy and Developmental Screening of Preschool-Aged Children During Primary Care. Pediatrics, e2024069941.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Concerns about development, behavior & learning among parents seeking pediatric care

Sheldrick, R.C., Neger, E., Perrin, E.C. (2012). Concerns about development, behavior & learning among parents seeking pediatric care. Journal of Developmental and Behavioral Pediatrics, 33, 156-60. PMID: 22183104.

SWYC Concerns, SWYC Publicationsswyc-concerns swyc-publications
Cross-cultural adaptation of the child development surveillance instrument” SWYC in the Brazilian context

Moreira, R. S., Magalhães, L. D. C., Siqueira, C. M., & Alves, C. R. L. (2019). Cross-cultural adaptation of the child development surveillance instrument” Survey of Wellbeing of Young Children (SWYC)” in the Brazilian context. Journal of Human Growth and Development, 29(1), 28-38.

SWYC Brazilian Portuguese, SWYC Milestones, SWYC Publicationsswyc-brazilian-portuguese swyc-milestones swyc-publications
Development and validation of the Parent-Reported Indicator of Developmental Evaluation for Chinese Children

Wu, S. S., Pan, H., Sheldrick, R. C., Shao, J., Liu, X. M., Zheng, S. S., … & Jiang, F. (2025). Development and validation of the Parent-Reported Indicator of Developmental Evaluation for Chinese Children (PRIDE) tool. World Journal of Pediatrics, 1-9.

SWYC Mandarin, SWYC Milestones, SWYC Publicationsswyc-mandarin swyc-milestones swyc-publications
Do parental stimulation practices modify the effect of child’s health status on early developmental risk? Findings from a hospitalized cohort

Rasheed, M. A., Mughis, W., Niaz, M., & Hasan, B. S. (2022). Do parental stimulation practices modify the effect of child’s health status on early developmental risk? Findings from a hospitalized cohort. Early Child Development and Care, 192(12), 1998-2007.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Early symptoms of autism spectrum disorders and association with Brazilian children’s development and behavior

Moreira, R. S., Guimarães, M. A. P., Magalhães, L. D. C., Moreira, J. M., & Alves, C. R. L. (2025, July). Early symptoms of autism spectrum disorders and association with Brazilian children’s development and behavior. In CoDAS (Vol. 37, No. 4, p. e20240306). Sociedade Brasileira de Fonoaudiologia.

SWYC Brazilian Portuguese, SWYC Milestones, SWYC Publicationsswyc-brazilian-portuguese swyc-milestones swyc-publications
Establishing new norms for developmental milestones

Sheldrick, R.C., Schlichting, L.E., Berger, B., Clyne, A., Ni, P., Perrin, E.C., Vivier, P.M. (2019). Establishing new norms for developmental milestones. Pediatrics, 144(6). PMID: 31727860.

SWYC Family Risk, SWYC Milestones, SWYC Publicationsswyc-family-risk swyc-milestones swyc-publications
Evidence-Based Milestones for Surveillance of Cognitive, Language, and Motor Development

Sheldrick, R. C., & Perrin, E. C. (2013). Evidence-Based Milestones for Surveillance of Cognitive, Language, and Motor Development. Academic Pediatrics, 13(6), 577-586. PMID: 3993976

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Factors associated with early childhood development: Brazilian National Survey on Child Nutrition

Freitas-Costa, N. C., Farias, D. R., Alves-Santos, N. H., Scincaglia, R., Normando, P., Rugani, I., … & Kac, G. (2025). Factors associated with early childhood development: results from the Brazilian National Survey on Child Nutrition (ENANI-2019). BMJ Public Health, 3(1).

SWYC Publicationsswyc-publications
From Descriptive to Predictive: Linking Childhood Developmental Screening Results with Educational Outcomes in Kindergarten

Schlichting, L., Vivier, P., Berger, B., McDermott, Sheldrick, R.C. (2023). From Descriptive to Predictive: Linking Childhood Developmental Screening Results with Educational Outcomes in Kindergarten. Academic Pediatrics, 23(3): 616-622. PMID: 35940569.

SWYC Milestones, SWYC PPSC, SWYC Publicationsswyc-milestones swyc-ppsc swyc-publications
How can we support children and families with information gleaned from developmental screening?

Weitzman, C. (2019). How can we support children and families with information gleaned from developmental screening?. Pediatrics, 144(6), e20192936.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Implementing the SWYC: A Quality Improvement Project and Its Impact on Care Delivery

Matsuura, Y., Richter, F., Block, G., Rosen, C., & Katz, C. (2025). Implementing the SWYC: A Quality Improvement Project and Its Impact on Care Delivery. medRxiv, 2025-01.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
Integrating pediatric universal behavioral health care at federally qualified health centers

Sheldrick, R.C., Bair-Merritt, M., Durham, M.P., Rosenberg, J., Tamene, M., Bonacci, C., Daftary, G., Tang, M.H., Sengupta, N., Morris, A., Feinberg, E. (2022). Integrating pediatric universal behavioral health care at federally qualified health centers. Pediatrics, 149(4): e2021051822. PMID: 35347338.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
Is a positive developmental-behavioral screening score sufficient to justify a referral? A review of evidence and theory

Sheldrick, R.C., Garfinkel, D. (2017). Is a positive developmental-behavioral screening score sufficient to justify a referral? A review of evidence and theory. Academic Pediatrics, 17, 464-470. PMID: 28286136

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
Is there a relationship between parental concern and suspicion of developmental delay?

Melo, M. L., Yamazaki, D. A. T., Santos, L. L. D., Souza, J. M. D., & Moreira, R. S. (2025). Is there a relationship between parental concern and suspicion of developmental delay? Revista Paulista de Pediatria, 43, e2024187.

SWYC Concerns, SWYC Milestones, SWYC Publicationsswyc-concerns swyc-milestones swyc-publications
Longitudinal stability and predictive value of socio/emotional/behavioral screening in an Outpatient Pediatric Network

Sheldrick, R.C., Birudavol, J., Hirshfeld-Becker, D., Carter, A.S., Perrin, E.C., Dutta, A., Benheim, T.S., Holcomb Scarpelli, J.M., Boudreau, A.A., Jellinek, M.S., & Murphy, M. (2025). Longitudinal stability and predictive value of socio/emotional/behavioral screening in an Outpatient Pediatric Network. Academic Pediatrics, 25(3), 102618.

SWYC BPSC, SWYC POSI, SWYC Publicationsswyc-bpsc swyc-posi swyc-publications
Multi-stage screening in Early Intervention

Eisenhower, A., Martinez Pedraza, F., Sheldrick, R.C., Frenette, E., Hoch, N., Brunt, S.M., & Carter, A.S. (2021). Multi-stage screening in Early Intervention: a critical strategy for improving ASD identification and addressing disparities. Journal of Autism and Developmental Disorders, 51(3): 868-883. PMID: 32144605.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
Pediatric neurodevelopment by prenatal Zika virus exposure

Sobral da Silva, P. F., Eickmann, S. H., Arraes de Alencar Ximenes, R., Ramos Montarroyos, U., de Carvalho Lima, M., Turchi Martelli, C. M., & de Barros Miranda-Filho, D. (2020). Pediatric neurodevelopment by prenatal Zika virus exposure: a cross-sectional study of the Microcephaly Epidemic Research Group Cohort. BMC Pediatrics, 20(1), 472.

SWYC Brazilian Portuguese, SWYC Publicationsswyc-brazilian-portuguese swyc-publications
Primary care autism screening with the parent’s observations of social interactions

Carbone PS, Campbell K, Villalobos M, Stuart A, Ellzey A, Stoddard GJ, … & Stipelman C. Primary care autism screening with the parent’s observations of social interactions. Journal of Autism and Developmental Disorders. 2025; 1-11.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
Provider responses to positive developmental screening: disparities in referral practices

Wallis, K. E., Rivera, L. B. D., Guthrie, W., Bennett, A. E., Mandell, D. S., & Miller, J. S. (2021). Provider responses to positive developmental screening: disparities in referral practices?. Journal of Developmental & Behavioral Pediatrics, 42(1), 23-31.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Psychometric properties of two developmental screening instruments for Hispanic children in the Philadelphia region

Gerdes, M., Garcia-Espana, J. F., Webb, D., Friedman, K., Winston, S., & Culhane, J. (2019). Psychometric properties of two developmental screening instruments for Hispanic children in the Philadelphia region. Academic pediatrics, 19(6), 638-645.

SWYC Milestones, SWYC Publications, SWYC Spanishswyc-milestones swyc-publications swyc-spanish
Quality improvement to eliminate disparities in developmental screening for patients needing interpreter

Brown, C. M., Dillon, B., Toth, C., Decker, E., Alexander, R. N., Chandawarkar, A. R., … & Snyder, D. A. (2023). Quality improvement to eliminate disparities in developmental screening for patients needing interpreters. Pediatric Quality & Safety, 8(4), e679.

SWYC Implementation, SWYC Milestones, SWYC Publicationsswyc-implementation swyc-milestones swyc-publications
Risk of global developmental delay in infants born from mothers with COVID-19

Silva, P. Y. F., Lima da Cruz, M. C., Guerra Azevedo, I., Moreira, R. S., Sousa, K. G., & Pereira, S. A. (2023). Risk of global developmental delay in infants born from mothers with COVID-19: a cross-sectional study. International Journal of Women’s Health, 467-474.

SWYC Brazilian Portuguese, SWYC Milestones, SWYC Publicationsswyc-brazilian-portuguese swyc-milestones swyc-publications
Screening for Both Child Behavior and Social Determinants of Health in Pediatric Primary Care
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SWYC Publicationsswyc-publications
Screening Infants through Adolescents for Social/Emotional/Behavioral Problems in a Pediatric Network. Academic Pediatrics

Benheim, T.S., Murphy, J.M., Sheldrick, R.C., Dutta, D., Holcomb, J.M., Hirshfeld-Becker, D.R., Carter, A.S., Riobueno-Naylor,A. Ver Pault, M., Holmén, J., Boudreau, A., Jellinek, M.S., Perrin, E.C. (2022). Screening Infants through Adolescents for Social/Emotional/Behavioral Problems in a Pediatric Network. Academic Pediatrics, S1876-2859. PMID: 36280038.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
Sensitivity and Specificity of 2 Autism Screeners Among Referred Children Between 16 and 48 Months of Age

Salisbury, L, Nyce, J.D., Hannum, C., Sheldrick, R.C., Perrin, E.C. (2018). Sensitivity and Specificity of 2 Autism Screeners Among Referred Children Between 16 and 48 Months of Age. Journal of Developmental and Behavioral Pediatrics, 39, 254-258. PMID: 29570569.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
Survey of Well-being of Young Children: Implementation and Impact on Care Quality

Matsuura, Y., Richter, F., Block, G., Rosen, C., & Katz, C. (2025). Survey of Well-being of Young Children: Implementation and Impact on Care Quality. Pediatric Quality & Safety, 10(5), e843.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
SWYC User’s Manual v101

Perrin, E. C., Sheldrick, C., Visco, Z., & Mattern, K. (2016). The survey of well-being of young children (SWYC) user’s manual. Boston, MA: Floating Hospital for Children at Tufts Medical Center.

SWYC BPSC, SWYC Concerns, SWYC Family Risk, SWYC Implementation, SWYC Milestones, SWYC POSI, SWYC PPSC, SWYC Publicationsswyc-bpsc swyc-concerns swyc-family-risk swyc-implementation swyc-milestones swyc-posi swyc-ppsc swyc-publications
SWYC: how does it fit for screening developmental delay in Brazilian children aged 4 to 58 months?

Moreira, R. S., Magalhães, L. D. C., Siqueira, C. M., & Alves, C. R. L. (2018). “Survey of Wellbeing of Young Children (SWYC)”: how does it fit for screening developmental delay in Brazilian children aged 4 to 58 months? Research in developmental disabilities, 78, 78-88.

SWYC Brazilian Portuguese, SWYC Milestones, SWYC Publicationsswyc-brazilian-portuguese swyc-milestones swyc-publications
The Baby Pediatric Symptom Checklist (BPSC): Development and initial validation of a new social/emotional screening instrument for very young children

Sheldrick, R.C., Henson, B.S., Merchant, S., Murphy, M.J., Neger, E., Perrin, E.C. (2013). The Baby Pediatric Symptom Checklist (BPSC): Development and initial validation of a new social/emotional screening instrument for very young children. Academic Pediatrics, 13, 72-80. PMID: 3763819.

SWYC BPSC, SWYC Publicationsswyc-bpsc swyc-publications
The effectiveness of screening in Early Intervention settings to improve diagnosis of autism and reduce health disparities: a difference-in-differences analysis

Sheldrick, R.C.,* Carter, A.S.,* Eisenhower, A., Mackie, T.I., Cole, M.B., Hoch, N., Brunt, S., Martinez Pedraza, F. (2022). The effectiveness of screening in Early Intervention settings to improve diagnosis of autism and reduce health disparities: a difference-in-differences analysis. JAMA Pediatrics, 176(3) 262-269. PMID: 34982099. *Dr. Sheldrick and Dr. Carter contributed equally as co-first authors

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications
The Preschool Pediatric Symptom Checklist (PPSC): Development and initial validation of a new social/emotional screening instrument

Sheldrick, R.C., Henson, B.S., Merchant, S., Murphy, M.J., Neger, E., Perrin, E.C. (2012). The Preschool Pediatric Symptom Checklist (PPSC): Development and initial validation of a new social/emotional screening instrument. Academic Pediatrics, 12, 456-467. PMID: 3907071.

SWYC PPSC, SWYC Publicationsswyc-ppsc swyc-publications
The Survey of Well-Being in Young Children (SWYC): Implementation and Lessons Learned from a Military Treatment Facility

Smith, A. L. C. A. E., Patterson, A. L. C. P. E., Flake, A. F. C. E. M., Center, R., & McChord, J. B. L. (2022). The Survey of Well-Being in Young Children (SWYC): Implementation and Lessons Learned from a Military Treatment Facility.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
The survey of well‐being of young children: Results of a feasibility study with American Indian and Alaska Native communities

Whitesell, N. R., Sarche, M., Trucksess, C., & Tribal Early Childhood Research Center Swyc Community Of Learning. (2015). The survey of well‐being of young children: Results of a feasibility study with American Indian and Alaska Native communities. Infant Mental Health Journal, 36(5), 483-505.

SWYC Milestones, SWYC Publicationsswyc-milestones swyc-publications
Utilizing trauma admissions as an opportunity to identify developmental and behavioral concerns

Serres, S. K., & Chen, C. (2017). Utilizing trauma admissions as an opportunity to identify developmental and behavioral concerns. The American Journal of Surgery, 214(4), 661-665.

SWYC Implementation, SWYC Publicationsswyc-implementation swyc-publications
Validation of Hindi translation of survey of well-being of young children tool in Indian children

Suman, P., Mushtaq, I., & Tandon, R. (2022). Validation of Hindi translation of survey of well-being of young children tool in Indian children. Indian Pediatrics, 59(7), 539-542.

SWYC Hindi, SWYC Milestones, SWYC Publicationsswyc-hindi swyc-milestones swyc-publications
Validity of the Survey of Wellbeing of Young Children (SWYC) to screen developmental delay in Brazilian children aged one to 65 months.

Claudia Regina Lindgren Alves, Rafaela Moreira, Isabela Scherrer, Brenda Godoi, Marcelo Amaral, Flavia Machado, Samara Costa, Livia Magalhaes (2018). Validity of the Survey of Wellbeing of Young Children (SWYC) to screen developmental delay in Brazilian children aged one to 65 months. Pediatrics; 142 (1_MeetingAbstract): 766.

SWYC Brazilian Portuguese, SWYC Milestones, SWYC Publicationsswyc-brazilian-portuguese swyc-milestones swyc-publications
What drives detection and diagnosis of autism spectrum disorder? Looking under the hood of a multi-stage screening process in Early Intervention

Sheldrick, R.C., Frenette, E., Vera Jones, J.D., Mackie, T.M., Martinez-Pedraza, F., Hoch, N., Eisenhower, A., Fettig, A. & Carter, A.S. (2019). What drives detection and diagnosis of autism spectrum disorder? Looking under the hood of a multi-stage screening process in Early Intervention. Journal of Autism and Developmental Disorders, 49(6), 2304-2319. PMID: 30726534.

SWYC POSI, SWYC Publicationsswyc-posi swyc-publications